Pain and Guillain-Barre

For many people, including myself, the pain that is endured during the onset of GBS can be more difficult to deal with than the realization of becoming paralyzed. Speaking with other GBSers, there seems to be different stages and levels of pain one does or does not experience. For me, the pain was excruciating from the start and finding relief proved to be a frustrating and sleepless process. After being given countless medications to no effect, I was put on a Morphine drip. Thankfully, that did the trick because I honestly don't know how much more I could of taken. I feel that a big part of why it took so long to find a solution was because I couldn't accurately describe my pain. Looking back now, I wondered if there was anything online that may of helped to classify my pain level or category of pain I had. In my search, I came across neurology.org, listed was a classification of different levels and types of pain described on a medical scale.

This is the Neurology.org mission statement: "Neurology® will provide clinical neurologists with outstanding peer-reviewed articles, editorials and reviews to enhance patient care, education, clinical research and professionalism."

Here is the link on pain: neurology.org

Hopefully this will help others the way I feel it could of helped me!

J.D.

New Blog: Information and Support for Guillain-Barre Syndrome

Hi Everyone,
This is the beginning of what I hope to be an informational and supportive blog for Guillain-Barre Syndrome survivors, family and friends. As many of us survivors know, GBS can be full of unanswered questions that are sometimes only answered by those who have also experienced GBS. This blog is a long time coming and will continue to be a work in progress, so stay tuned!

Thanks,
J.D.